Posted in Beating Hemiplegic Migraine, Chronic Migraine, Daily Migraine, Health Blog, Hemiplegic Migraine, MU Health Care, Seizures, Today I Win, Uncategorized, University ER, University of Missouri Health Care

YES finds a way.

A couple of months ago the way my mom and I were treated at a local hospital, one that we depended on and begged for answers, was absolutely NOT okay. I applaud my mother for keeping her composure that night as we sat fearful, confused and angry. I mean angry. I have used explicit detail to describe some horrible experiences to many of you, yet that night was the most scared I have been in my entire health journey. We needed help. I needed help. But instead it felt like we were being suffocated by health system politics and the poisonous words of one doctor. Though I wish I could call that business and each person involved out for everyone else to gawk at, I knew that wasn’t purposeful. Instead, I waited until I could write this post with a positive light to be shined on it. Never did I think two months later I would have such a positive post to write that I knew I couldn’t cram every awesome detail in. But, here I sit.

Dear Doctor

Walking into the University of Missouri hospital in the middle of night, deep into an attack, with so many unknowns and even more emotions wasn’t something my mom or I felt like we could tackle that night. The second we walked in the door, my aunt, who normally works weekend nights and it was Tuesday, was sitting in triage. I happened to glance that direction trying to get a feel for the new place I would probably be getting to know quite well. I did the quickest double take ever when I saw Shelly, who immediately pulled me back and began the triage process without question of what brought us there. I was quickly assigned a nurse and doctor. As we waited for the doctor to come in my mom and I looked at each other, communicating the deepest hate for this process without having to speak. My sweet doctor came in and immediately reminded me of Grey’s Anatomy doctor Arizona. ❤  As we talked she took a second to stop and say, “Honey, why did you wait so long to come in?” With responses from my mom and I like, ohh if you even knew and big sighs she ended with, “People come in here for the silliest things. This is not silly. Don’t wait so long next time.” My mom called my grandma back crying, an hour before she had called her out of question, this time all she had to say was, “They listened”.We didn’t have to tackle anything that night, we just had to tell our story and instead, they tackled it.

Two trips later, the receponist checking people in didn’t ask why I was there, instead said, “Hemiplegic Migraines, right? You don’t forget a teenager who looks like they’re having a stroke.” Again, we were shocked at the level of care. That night on-call neurology visited me. Who ever woulda thought to call neuro down for a neuro patient in the ER, huh? Lol. The neurologist and his attending, who I couldn’t take seriously thanks to my brother’s new persona, Raj, both examined me concluding that yes I was most definitely weak and suffering from a Hemiplegic Migraines. They also noted the swelling of the right side of my face. In fact, all the doctors wether PA or attending that came into contact with me examined me. Ground breaking. Worries of my high heart rate were spread, and after the third person came in to make sure I wasn’t keeled over with chest pain and my heart rate was indeed that high, my mom asked what a HR should be. The answer? Under 100. Mine? Sitting pretty in the 150-160’s. That trip was a long one and the list of attempted medications was quickly growing to match in length. I pleaded my apologies to my nurse as I was so frustrated that my medical team kept trying and my body just would not give in. My nurse responded with, “Why are you apologizing? I’m sorry we haven’t helped you yet.” Tears. I was admitted that night in hopes of more recovery where they could continue to monitor me and help me. It had been a long night so my aunt swung by to check on me and offer some humor, everyone thought my dad was my significant other. Why does that ALWAYS happen in hospitals?😂  I was given steroids every six hours to help the swelling. My old neurologist once looked at my swollen face, and after swearing to him I wasn’t self harming, concluded, “Your muscles are probably just fatter on that side.” I kid you not.

Every time we’re forced to make that trip we cringe at the gamble it is. But really, so far, these people haven’t made it a gamble. I’m treated like a human being in crazy unfair pain. I told my last doctor, “unfortunately I come in here a lot.” She said, “Well I completely understand why you do.” I’m not used to my vitals being monitored and taken seriously, so seeing how high my heart rate and blood pressure can get each time is eye opening, and also probably means that that has been the case for awhile. Unfortunately, the “other guys” would just turn the vitals machine off when it sounded, or better yet not hook me up at all.

I seriously have a note saved on my phone with quotes of how these doctors and nurses treat me, mostly because we’re just waiting for the other shoe to drop. I wish making a blog with quotes from my old doctor compared to quotes from my ongoing experiences was acceptable, or I wish I could just pack this post even more full of examples of the care I am receiving. It feels like a whole new system. I’m also thankful to have had my aunt advocating for me for so long, more than I ever knew. I come into contact with ER staff that has heard stories about this for awhile, so they know I’m not just really good at faking. I never thought I’d be posting about such excellent local care, I just pray that it continues. The University of Missouri Health Care slogan reads, “Where YES finds a way.” and my goodness have they achieved that.

MU_Billboard_YES_finds_a_way

I have an appointment coming up in about a week, so cross your fingers, eyes and toes!!!!!

fingers crossed gif

Advertisements

8 thoughts on “YES finds a way.

  1. hadley, very well said, I hope that somebody from the other hospital see’s this post! Laura

    P.S. This would be a great chapter in your book!!

    Liked by 1 person

  2. Hadley it makes me upset to hear this as reducing patient suffering and anxiety is the mission of my company. I work for Press Ganey which is focused on improving the patient experience . That is done through patient feedback from patient surveys . I ask that you fill surveys out when you get them even though I am sure you get a lot. Unfortunately Mizzou does not use Press Ganey (trust me they are on our list and we recently had a meeting with their CEO). But they work with a vendor who should be helping them with improvement . I am going to pass your blog along to my Chief Medical Officer. He was the CMOnfor Partners Healthcare in Boston and recently placed on the list of Top 50 Healthcare Leaders voted by Modern Healthcare. I just want you to know that your voice matters and you can express that through yelp and surveys. Our healthcare system is moving towards value based healthcare and providers are reimbursed on quality and patient satisfaction. Keep your head up. You are stronger than I could ever be!

    Like

    1. The University has sent me a few surveys in which I’ve gladly filled out and given excellent reviews! Boone has not ever sent a survey though. I gladly gave them a poor rating through Google but wasn’t sure which ones made a difference.
      Thank you!💜

      Like

  3. This blog brought tears to my eyes. I am so glad that you are getting the care that you deserve. I am also proud that I work of the University of MO and also feel completely sure about taking my family to any physicians or facilities and we always get treated with respect. I hope that things continue to be favorable for you and I hope that all your encounters will be surrounded by providers that support the Universities Culture of YES!

    Liked by 1 person

  4. Hadley, I work for the Emergency Department at University Hospital now, and I’m so delighted that you have had good experiences. I work with the doctors on a daily basis, and it would be really great to know who treated you so that I can pass along the good words (if youd like that). I hope you’re doing well!

    Liked by 1 person

    1. It didn’t know that, so many people have ties to them. Absolutely! Lara was my “Dr Arizona” 😉 and both Dr. Sheas! I wish I could remember some other names of our favorites. If I come up with them I’ll have to let you know! Thank you☺️

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s